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dysautonomia Postural Orthostatic Tachycardia Syndrome POTS

Drop Measuring

  

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dysautonomia Postural Orthostatic Tachycardia Syndrome POTS

The Pain

I love to draw, and it has always been my passion. But, unfortunately, there is not always that much time and energy for this because of POTS. Once in a while I take a moment just to make a quick sketch to keep practicing. In one of those moments, I made this drawing: I just […]

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dysautonomia Postural Orthostatic Tachycardia Syndrome POTS

Still Learning to Cope

Back in the fall of 2014 I had a major breakdown. I have lived with POTS for many years, but in the last 2-3 years my symptoms have become more severe. Then I reached a point, where I felt that I was losing the daily battle to keep a life worth living. I was exhausted […]

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dysautonomia Postural Orthostatic Tachycardia Syndrome POTS

Bootstrapping out of the Darkness

See that animated gif to the right? Well, that is basically me right now. I had a major breakdown in the end of November 2014, where I started getting really bad thoughts and I couldn’t handle anything any more. I was so fed up with having to pull myself together to live “a normal life” […]

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dysautonomia Postural Orthostatic Tachycardia Syndrome POTS

Here’s to Hoping 2

A while back I wrote a post about hope (Here’s to Hoping). I had just started to take Gutron in small quantities, and the results seemed promising … hence, the hoping. So I thought that now it was about time to evaluate. For 14 days the effects of just taking 1/4 pill (1.25 mg) three […]

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dysautonomia Postural Orthostatic Tachycardia Syndrome POTS

A Rusty Bird Tries Again

Several days ahead I feel the butterflies in my stomach. A mixed bag of butterflies with fear for the unknown and excitement for the possibilities of a change in this annoying stalemate. It’s been years since the last time, and I feel like I’m fumbling through the process again like a newbie. I try to […]

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dysautonomia Postural Orthostatic Tachycardia Syndrome POTS

Loving the Sick

For many years two feelings primarily dominated my life. One was anger, oozing out from the pain of being sick and primarily directed toward the cause of it – my own body. The other was fear of losing the good things in my life because of POTS and the way it made me a less […]

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POTS

Work & POTS

For many people with a chronic illness like POTS, work is a very sore point. The only constant in one’s life is that nothing is constant. Even after living with the sickness through many years, I don’t feel like it has become easier to predict how my days will unfold. The wires do not just […]

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dysautonomia Postural Orthostatic Tachycardia Syndrome POTS

Here’s to Hoping

There was finally a ray of hope today, after months of feeling awful and fighting hard to keep my job and stay sane. Over the previous years of dealing with my POTS condition, I have tried all kinds of medicine, but the result have always been either no effect or too critical side effects. A […]

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POTS

POTS Symptoms Comic