POTS & Pains
My life with Postural Orthostatic Tachycardia Syndrome
Thank you so much for writing this blog. I have been going through a really difficult time with my POTS and coming across this has made me feel more hopeful and less alone. Thank you particularly for the above picture – I compare myself to other people all the time even though I know I shouldn’t. I hope you don’t mind but I have printed this out and stuck it to my fridge as a daily reminder. Thank you for making my day better 🙂
Thank you Annie for your kind words and I’m so glad you use the image for inspiration. You made my day better 🙂 And you have inspired me to get back to writing on this block, which I honestly couldn’t pull myself to do for a long time. I hope your POTS has become more manageable and that you can have a good life. Your are not alone. I know just what you go through and be proud of yourself for what you do. It takes strength to live with POTS, so stay strong and I’m sending some mental energy your way 🙂
I just found your blog, and this one stuck out for me. I was diagnosed with POTS about a year ago, after it worsened over 10 years. Not only do I struggle almost daily comparing myself to other people, I think the hardest thing is comparing myself to myself X years ago when I could still climb a flight of stairs without almost passing out, or when I could clean my house and not be exhausted. Physical Therapy isn’t going as well for me as I’d like because I keep pushing too hard, even though “slow and steady” is what I keep getting told. But then I start thinking “10 years ago I was in sports! 5 years ago I could walk up 4 flights of stairs with no problem! Why can’t I fold laundry today?” I’m still learning to cope, but comparisons are my biggest downfall…
It’s helpful to find other people with POTS, knowing I’m not alone, and knowing that what I’m feeling and thinking is normal. It also gives me hope that someday, I’ll finally manage to fully come to terms with it and just deal with it as it is. Thank you for your blog!
Thank you for sharing your story. It’s such a good point that it’s also about not comparing with one’s former self. It’s a hard battle to learn to live with POTS. I have become better at handling it over the years, but I don’t think it will ever not be a battle. One thing that really helps me is to keep a gratitude diary. It forces me to focus on the good things in my life and keeps my mood up. I also focus on finding small hacks that can help me cope with the things that makes my POTS worse. For example, I fold laundry on the floor instead of while standing or sitting or after I exercise I drink a cup of coffee and relax before taking a shower, which prevents me from getting dizzy etc.
Another thing that helps me is keeping to a quite rigorous time management system, that I’ve constructed based on my experience with overdoing stuff. I used to continually push myself to hard, just like you, and it kept ruining the progress I was making. Every time, things went well I got over optimistic and did too much. So the system I keep today is one where everything I need to do is measured into energy-realistic slots of time. I have found out how much time I can realistically use on exercise, work, household tasks etc. and then try to stick to it. It took me a couple of years to find the right balance and I still tweak the system once in a while, but it has helped me to control my urge to do to much.
Hope you are doing well and that the physical therapy is helping. And remember that you are not alone. I can tell from what you write, that you are a strong and awesome person 🙂
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